***Please excuse the spacing through out. I don't know what happened and I can't fix it!***
I think that a lot.
Then I feel that what I say doesn't really matter to the majority of people.
Then I feel that I don't want to deal with someone who thinks I hate my child because I hate what Autism does to her.
Then I feel like I don't want to deal with the division in the community.
Sometimes it is loud and clear.
Sometimes it's the quiet little words that people sneak in that set you back and make you hesitant to post.
But it is my blog.
I shouldn't be afraid to post what I want but at times I am.
So I want to tell you that for the second year in a row I went to the AutismOne Conference held in a town not far from where I live. I went last year: 2011. I know that Jenny McCarthy is a dividing force in the community. I can see why. But there is much more at the conference than what people think ie: biomedical, supplements etc.
These are the titles of talks I went to:
Applied Behavioral Analysis for Individuals with Autism and Developmental Disabilities
If your child is newly diagnosed or you are unsure of therapies this might be something to go to. This was actually with a really boring speaker, imo. I have seen James Ball talk last year with Temple Grandin and he was so engaging he made ABA therapy sound interesting (which it really isn't at times!)
Know Your Special Ed Rights: IDEA Overview & Preparing for Advocacy
I went to this last year and spent the whole day listening to it. I went back this year to Thank them. Lynne Arnold actually said she remembered me from last year's conference. I used some of the idea's to get a daily report from my daughters school. They were very happy to hear that she has made progress. This to me last year and still this year is one of the most important things a parent with a special needs child needs to attend. It is an all day talk. But what you learn in those 8 hours is so damn helpful.
How to Set Limits Without Losing Your Mind: Behavior Strategies That Make Life Easier
This was interesting in the aspect that it was a gentle reminder not to be so hard on yourself and how to learn to deal with your child's actions.
Anatomy of an Autism Claim 101
I bet you think that's for like vaccine claims right? Wrong. That's what I thought it was to. The description in the booklet was just that short. Unless you looked up the title you would not have known it was about insurance claims. When I was walking through the conference hallways I saw the lawyer and the insurance advocate at a booth and on their sign and pamphlet it talks about INSURANCE claims.
Holy hell every damn parent with a kid with special needs that I know of has damn problems with their insurance. If you go to this next year and you see this talk make sure you bring a copy of your insurance policy and denied claims. They will help lead you in the right direction. Our insurance flat out will not pay any claim that is related to the Autism Spectrum Disorder because they are a self funded policy. But what if you went there with tons of claims that went unpaid and they lead you in the right direction and suddenly you had thousands of dollars of claims taken care of? Wouldn't that be wonderful?This was just for second day of the conference on Thursday. I only attended 2 days (Thurs & Friday) and it was held 5 days.
On Friday I attended these talks:
Natural Approaches to the Dysregulated Nervous System: Healing Sleep, Stress and Seizures
This was interesting. My little one has sleep and stress issues but no seizures. It mainly was focused on the seizures aspect but talked about how all three are intertwined together.
Shining the Light on Sequential Homeopathy: Essential Tools for Recovery and True Healing
Basically it was homeopathic therapy. Nothing wrong with trying a homeopathic approach to helping our children. I actually take a natural herb to help with my anxiety. Since being on a natural herb my anxiety has been greatly curbed and I'm not angry and mean like I was on a the pharmaceutical drug my DR prescribed for me. So this was a very interesting talk to sit through.
Food with Benefits
I caught the tail end of this talk. This was interesting in the aspect of trying to eat healthy or if you have a child with gut issues. We actually think our little one has some underlying gut issues but we are unsure about putting her through the testing but most likely will one day.
Estate Planning for Special Needs Children – What Parents Need to Know
One of my best friends and I attended this together. We were told when we got little one's diagnosis that we should primarily put together a special needs trust for her. Which after 2 years we still haven't done. What this talk did was emphasis how important it is to have one done and how important it is to have a letter of intent written.